Strange Beauty: A Portrait of My Son

Strange Beauty A Portrait of My Son A unique and hopeful story of how one woman and her family were transformed by her child s multiple disabilities and inability to talk and how she in turn transformed a community This intimate no h

  • Title: Strange Beauty: A Portrait of My Son
  • Author: Eliza Factor
  • ISBN: null
  • Page: 367
  • Format: Kindle Edition
  • A unique and hopeful story of how one woman and her family were transformed by her child s multiple disabilities and inability to talk and how she, in turn, transformed a community.This intimate, no holds barred memoir shares one family s experiences with a child who is both autistic and physically disabled It is a story of infectious laughter, blood on the floor, intenseA unique and hopeful story of how one woman and her family were transformed by her child s multiple disabilities and inability to talk and how she, in turn, transformed a community.This intimate, no holds barred memoir shares one family s experiences with a child who is both autistic and physically disabled It is a story of infectious laughter, blood on the floor, intense physical conflict, and of two little girls growing up in the shadow of their charming and fitful brother And it is the story of a mother and writer and the illuminating effect of imagining the world through the eyes of her beautiful, charismatic, and nonverbal son, Felix Felix and his sisters inspire Eliza to start Extreme Kids, a community center that connects families with children with disabilities through the arts and play, and transform how she saw herself and the world She writes of the joy this project brings her, as well as the disconnect of being lauded for helping others at the same time that she cannot help her own son.As Felix grows bigger and stronger, his assaults against himself grow destructive When his bruised limbs and face prompt Child Services to investigate the Factors for abuse, Eliza realizes how dangerous her home has become.Strange Beauty is a personal story, but it shines a light on the combustible conditions many families are living in at this moment The United States offers parents whose children are prone to violence very little help That Eliza s story ends happily, with Felix thriving at Crotched Mountain School, is due to luck than policy There are few such schools and many such children When children are violent, we fail to account for the internal and external pressures that lead to violence This is both cruel and counterproductive, for people with disabilities have much to teach us, if we will only listen.

    One thought on “Strange Beauty: A Portrait of My Son”

    1. This is a book I would recommend to my students who are studying to become special education teachers to remind them what it's like for some families who have children with complex health issues. Eliza Factor is a very good writer and there were so many striking passages in this book with her thoughts about the concept of "disability" itself, the mindlessness of bureaucracy, the scattered and uncoordinated services that exist for families, and how expensive it is to have a child with special nee [...]

    2. I got this ADC from Netgalley for review.This is the story of a family whose firstborn has multiple disabilities, possibly due to the author contracting chicken pox during the pregnancy. It is a story of bureaucracy, frustration, and incredible resilience. Short read, but it will stay with you long after you finish it.Recommended for anyone who appreciates non-fiction tales of the human condition.

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